Greater protections for people living with fibromyalgia and concrete answers to requests put forward in recent years. These were the central themes of the audience granted today, Thursday 12 November, by San Marino’s Captains Regent, Gerardo Giovagnoli and William Casali, to the executive board of the association “La Fibromialgia a San Marino.”
The meeting, requested by the association, allowed the Heads of State to be made aware of the everyday difficulties faced by patients and the issues still unresolved regarding recognition of the condition and the related forms of protection.
According to the association, despite progress made at the regulatory level, several problems remain unresolved, for which effective measures and greater attention to the needs of people living with the illness are being called for.
During the audience, the board outlined the main critical issues, finding — as the statement underlines — sensitivity and willingness to listen on the part of the Regency.
Particularly significant, according to the association, was the commitment shown by the Captains Regent to act as spokespeople for these requests within the relevant institutional bodies, so that patients’ needs can be properly addressed.
Commenting on the outcome of the meeting, president Martina Bianchi thanked the Heads of State for the attention they showed.
“We felt genuine sensitivity and real attention from Their Excellencies the Regents, and for this we wish to express our heartfelt thanks,” said president Martina Bianchi.
“Our hope is that this meeting can help give new momentum to an institutional process that must translate into tangible results. People living with fibromyalgia are not asking for privileges, but for full recognition of their needs, adequate protections and the chance to face the illness with dignity.
We are ready to work with all institutions so that words can finally be turned into action.”
The association also confirmed its willingness to engage with all political forces and San Marino’s institutions, asking that issues related to patients’ health and rights be addressed regardless of political affiliation.
“The time for waiting cannot become a permanent condition for those who already face the daily difficulties of this illness,” the statement reads.
“La Fibromialgia a San Marino” will continue to monitor developments on the institutional and legislative front, keeping patients and the public informed of any news.
The association hopes the audience will help bring about measures capable of concretely improving the quality of life of those affected.
“Because the right to health, to dignity and to adequate protection can wait no longer,” the statement concludes.
